Since day one back at home from Riley- Zach and I have dedicated ourselves to make the best of this botox. To make the best, we have chose for Blake's physical therapy to be upped to 2 times a week, while his Occupational, and Speech therapy come once a week. Now that school has started back up he also receives PT, OT, and speech there weekly too! (Talk about making up for the two month stretch without therapy!)
We try to stretch every morning, and we practice cross leg sitting, long leg sitting everyday. Blake doesn't mind too much- he gets to watch Mickey during all our stretches and exercises.... And we all know how much he LOVES Mickey! We try our best to get the best results for Blake despite it being somewhat repetitive. Here is a look at some of the stretches we do.
To give an idea of just how lose his legs have gotten post botox here is a picture showing the stretch and flexibility we have gained in his adductors. Where the top picture I had to apply pressure just to open his legs that wide- the bottom picture you can see he can open without any help at all. This makes holding him feel very odd because he always used to grip our sides very tightly with his legs.
The left hand is better- not as noticeable a difference as his legs but you can notice a slight opening during rest in the below picture.
Blake's left hand does not work the way his right does, he has some issues with grasping, pointing and dropping objects. And most of the time his left hand is truly just a stabilizer. Although he can function without using his left, it is important to try and gain these simple tasks...we have been working very hard at grabbing objects and dropping.
Here is a short video of Blake's left handed skills.
We have also been really working on walking, which is honestly one of the most trying things to work on. Because Blake can get everywhere with crawling he has no interest in doing something that is harder work for him! (I mean who would want to do the harder thing?!?) But we will power through it and practice practice practice! For I can not explain to you the dreams I have for one day this boy to come running to me!
Here is a short video of Blake's walking in his gait trainer.
ONE DAY I WILL MOVE MOUNTAINS!