July 10, 2012
CAN. NOT. BELIEVE. IT!! Blake will be 3 months old tomorrow. It is a bittersweet feeling, only 3 weeks from now is the boys original "due date" July 29th, and my little boy is already almost 3 months old! He has made it- made it through surgeries and procedures, and labs, and xrays, etc. etc. etc. Our living, breathing miracle! And no doubt has made it this far because of the support, prayers, positive vibes, and a little help from Conor!
This week like every other week has again, been full of ups and downs. Yesterday on the 9th Blake looked "ready" to be extubated- all of his ABG's looked great and the doctors believed he was ready to go back to the vapotherm.
Mommy and Blake before extubation...
Blake resting but ready...
Blake on vapotherm!
We were excited.... that was until our poor little man started to cry, wail, and attempt to scream! He was still in pain from his big belly surgery and developed a stridor caused by swelling in his airway...Blake was just not ready...SO unfortunately about an hour after the tube came out....
Back on the ventilator we go... "why this thing again?!?!"
Just because we had a minor set back though does not mean Blake will not come off the breathing machine. Today Dr. Troutman gave Blake a dose of Lasix to help remove some of the extra fluid on board...poor little man is still mighty swollen! And hopefully (fingers crossed) we will be extubated in the next few days or so once some of that fluid is off! They also plan to give him a small dose of steriod right before pulling the tube next time to help reduce the inflammation in his airway.
Blake abdominal incision is healing well.
They are still starving my poor man They are still "holding off" feedings waiting for his belly to heal and bowel sounds to become more active...BUT little boy has been passing gas (HOORAY!!) and actually had a small amount of liquid stool today! (not something you are normally super excited about!) but coming from having a "POOP BAG" to a normal functioning bowel is a celebration we are ready for!!!
Zach and I are so honored today to share our little miracle to the world...
A website Zach and I get on for the occasional comedic relief www.thechive.com (this site might be a little much for some of our older or severely young readers- warning was given!!) while in the NICU published a picture we sent them of Blake in his Keep Calm Chive On shirt I made him...
and posted our story for the world to see...we couldn't be more happy from the positive messages being sent to our family and best wishes! It truly is a special thing to see how many people are supporting us through this really difficult time! But we know our little boy is a fighter and though there is no discharge date in site--and we are really missing the bluegrass state, our home and our friends and family--we know we are where we need to be! And we will do whatever Blake needs to keep him thriving! He has already exceeded all expectations and we will be looking forward to his very bright future!! Thanks everyone for the support and know we love ya!
Daddy having a "deep conversation" with Blake!
Blake all swollen...he has a neck I PROMISE!!-
you can see the post from a few days ago as proof!
Mommy having a convo with her lil' man!